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SMA Respiratory Choices

There are three options for a sma child.

  1. NIV Approach:   This approach is taken when the parents don't want to trach the child but doesn't want to let the child go either. A BiPap ventilator is used for breathing when sleeping or as needed. A Cough Machine is used to expand lungs and clear mucous out of the airway. This is the newest and less invasive approach for sma children.
  2. Tracheotomy:  This approach is when a trach tube is surgically placed into the trachea (airway). This is the older approach, but still used. Children are more prone to infection and illness with this. A Cough Machine is still used to clear lungs and stay healthier.
  3. Pallative Care: This approach is when the parents decide to let their child go. They do things to make the child comfortable, but don't intervene any.

Cough Machine

The cough machine is very important to sma children. They have no effective cough, therefore, to stay helathy and do better during illnesses, they NEED the cough machine. It's painless and the child might not care for it, but it is very effective. Pressures of 40/40 are crucial. It's not very effective unless you get to those pressures. Please check out their website for more info:

www.jhemerson.com

 

Dr. T.L. Carey

Dr. Carey is the best doctor in Oklahoma for sma children. He has been taking care of SMA children for over 20 years. He is aggressive and positive in taking care of them. He does the NIV protocol, but is opne to what the parents decide. He is a pediatric pulmonologist.

Dr. T.L. Carey

7125 S. Braden Ave.

Tulsa, Ok 74136

918-481-8100

(If there is an urgent need to see Dr. Carey, please contact Jana and she will be able to help.)

Dr. John Bach

Dr. John Bach is the premier doctor for sma children. He started the NIV protocol for sma type 1 children. He is known worldwide. He is a very caring and dedicated doctor. Please see his unofficial website to learn more. 

www.doctorbach.com

 


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